Undiagnosed Immunosuppression
My health has been deteriorating with new issues compounding at a seemingly exponential rate. I don't have a diagnosis and don't meet the CFS criteria but am looking for advice in case anyone has had...
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Poll on Immunoglobulin antibodies - Please respond if you've been tested!
Just wondering how common it is for us to have documented immunodeficiencies here on PR. If you have had one of these (IgE for example) very HIGH, please select this response and elaborate in a...
View ArticleLoss of IgG antibodies
Hi everyone, I've lost the IgG of EBV, which infected me 12 years ago, starting my M.E. My immunologist said she have never seen a person who had lost IgG. Have some of you lost IgG of EBV or of any...
View ArticleWould it be better to see a Infectious Disease Doctor or Immunologist?
For side effects as a result of a vaccine (Hep B vaccine). If you feel more comfortable to PM rather than say it on public, please don't hesitate to PM me.
View ArticleNegative IgM means no active infection?
I’m a bit confused. Does having a negative IgM on a blood test for a virus usually rule out an active viral infection? For instance on my EBV blood test I have positive IgG, negative IgM and positive...
View ArticleChronic stuffed up nose, Nonallergic rhinitis?
It’s major spring allergy season where I live , and I believe it triggered my allergy symptoms, which involve a stuffed up nose, sneezing, and mucus in my throat. But now I’m in Hawaii on vacation and...
View ArticlePhase separation found in immune response within cells
https://www.sciencedaily.com/releases/2022/06/220606134443.htm More insight into how the immune response works. This kind of knowledge might trigger an "Aha!" insight in someone working on ME.
View ArticleInformal Survey re: IVIG
I know we have several threads on IVIG but now that my doctor has just sent in the pre-auth to my insurance, I realized that I wanted to do a quick survey to compare people's experiences and have the...
View ArticleIs it a new disease or its CFS ?
Its been almost year since that damn night that changed my life , i had sex with a CSW and in one week every thing start to change and those are my symptoms since now : 1) Oral trush on my tongue with...
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So I'm wondering which doctors in the US still treat ME with antivirals
Just wondering if there are still doctors in the US who prescribe antivirals to treat this disease. Maybe one who also offers virtual visits since traveling is so hard for us. Asking for a friend but I...
View ArticleFilgotinib case studies
Filgotinib has been on the market for over a year now. Thus far i have not found any case studies. Is anyone on the forum using filgotinib? Or perhaps know of any case studies, or experiences posted...
View ArticleI have Hereditary Alpha Tryptasemia , what does this mean for my care?
I have long had sensitivities to things like mold and outdoor toxins such as Mystery toxin Hell toxin Cyanobacteria Fire Retardant Associated Toxin There was always a lot of crossover with ME/CFS as...
View ArticlePossible Stiff Person Syndrome
I was diagnosed with small fiber neuropathy after covid or the mrna vaccine. My burning and pain in my body( arms, legs, back, spine etc several body parts) matches the symptoms of it. However, I have...
View Articlegetting tested for allergies - anything I should check for ?
Hi guys, So I'm getting tested for allergies on Thursday. Apparently even WITH insurance, my out-of-pocket costs come to $1,479 for consult and testing because I haven't met my deductible yet (I have...
View ArticleIs sinusitis a thing with us?
I have suffered sinusitis / congestion for years .. at first it would get infected now it's just congestion / pain . It's my whole left side lymph node , ear and sinuses ... Any experience / knowledge ?
View ArticleImmune problems, covid, and waiting for the right vaccine
I can't feel safe going out to appointments, which I desperately need for a number of things, until I'm somewhat immunologically protected against covid. I'm unvaccinatd. I have seen what the mrna...
View ArticleEvusheld, long lasting aspects, and possible side effects
At this point I don't think evusheld or novavax are terrible risks compared to other immunization treatments against covid, or compared to effects of covid itself. However I do worry about one thing. i...
View ArticleMalnutrition and inflammation
Now this could be related to several categories but I'll put it here. May be moved to a nutrition category though. Would be grateful to everyone for thoughts. So, I do have a particular nasty thing...
View ArticleGetting Ulcers Again From SCIG (sub-cutaneous immunoglobulin)
So, as some of you know, I started SCIG again for my Autoimmune Encephalitis. In 2018 I did high dose IVIG and sooner after developed severe esophageal ulcers, mouth ulcers and swollen lips alongside...
View ArticleAdverse reaction to nasal steroids (mometasone). Angioedema?
Tl;dr i had a reaction to nasal steroids. I have nasal obstruction. THis has never been diagnosed or treated; two ENTs stuck a camera up my nose and found nothing. My GP basically told me "You're lucky...
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